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February 24, 2021
New Hampshire Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate New Hampshire legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the New Hampshire Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.
Registration: https://www.congressweb.com/signup/?id=A3916D5E-5056-9235-14C3F1F8EB1794F0