Aaron’s Tracheostomy Page is written by a parent, Cynthia Bissell, RN, to help assure the highest quality home care for…
Resource Categories: Muscular Dystrophy
FSHD Society
Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. Typically beginning in…
Muscular Dystrophy Association
The MDA offers information about specific services and how to best utilize these many resources, which can make a critical…
Muscular Dystrophy Resources
Muscular Dystrophy Association Telephone: (800)-572-1717Website: https://www.mda.org/
Myotonic Dystrophy Foundation
The Myotonic Dystrophy Foundation is the world’s largest myotonic dystrophy (DM) patient advocacy organization, connecting people living with DM in…
Parent Project Muscular Dystrophy
A nonprofit organization focusing on Duchenne muscular dystrophy. PPMD funds research, raises awareness, promotes advocacy, connects the community, and broadens…
Swim Angelfish – Adaptive Swim Program
Angelfish Therapy provides aquatic therapy with licensed Physical and Occupational Therapists. They are specially trained on working in the water…