This network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations. The network is a dynamic and growing open space for shared resources, creative tools, and innovative programs. Are you looking for disease information or support? A comprehensive database will help you locate more than 13,000 conditions and thousands of support groups and foundations.
Link: Genetic Alliance
Phone: (202) 966-5557